That’s right! Last week, I had a triple MRI. All scans are and have been 100% stable since my HSCT in 2013. The last brain MRI I had was 2.5 years ago and the last MRI of my spine was over 7 years ago, just after transplant. I’m not gonna lie. I was nervous about the spine. Any symptoms of mine that have ebbed and flowed over the years have typically been rooted in my cervical or thoracic spinal lesions. Since my cranial surgery in January for trigeminal neuralgia, a bout of shingles and the flu that followed soon after, then COVID lockdown, I’ve been physically weaker than I’ve ever been. My core, my legs, my feet…all shot to hell! Who knew all the walking while shopping I do (DID pre-COVID) helped to maintain a much stronger me. Yes, I could be exercising more at home. Yes, I could be walking more…in my yard, but I haven’t. Now that I know my weakness isn’t from MS progression, I’ve got to get off my lazy ass and get to work! And binge-watching Netflix doesn’t count (bummer).🙄
I realize HSCT is not for everyone. But, it’s currently the most durable treatment to HALT (not just slow) the progression of MS (and other AID).
If you’re interested in more info, I’ll be happy to guide you in the right direction. If not, I wish you all the best in your MS journey. I’ll still be here cheering you on.
Do you believe it?! Last month was my 7-year stem cell birthday and still no progression!
So much has happened this past year. I was able to travel to New York City two times (see pics below), become the host of a podcast, and was recently asked to be the host of a virtual summit for The MS Gym, but I’m just as excited to share with you this YouTube video, where I talk with my HSCT comrades, Jeff and Tammy, who were treated in Moscow when I was in 2013. We each had different types of MS, different outcomes, and varying recovery trajectories. We share where we’re at now, what our current EDSS is compared to pre-transplant, our thoughts on re-vaccination and lots other insider info. It’s an honest look at what you can expect during treatment, and the often bumpy road that follows post-transplant.
So, whether you’re researching HSCT, scheduled for HSCT or post-HSCT, here’s your chance to hear what recovery looks like at 7 years out!
I Love New York!
From conferences to book launches, South Street Seaport to Midtown, this city I love is like an obstacle course if you have mobility challenges. Slow and easy wins the race was my mantra and by slowing down you notice all the little nuances this city has always served up but were always too busy to savor.
There are gifts in every setback.You can either let your MS be the ruining of you or the reinvention of you.I’ve chosen the latter…trekking poles included.
I’ll be taking this summer off to chill and work on some exciting new ventures. In the meantime, you can find me on Instagram or my post-transplant websitewww.brookeslick.com.
Well guys, it’s coming up on my 6th stem cell transplant anniversary and I’m STILL talking about HSCT whenever I get the chance.
I’ve had more than a few opportunities over the years, and most recently, I was the first Moscow veteran to be interviewed on the HSCT Warriors Podcast. It was an honor to share my Moscow experience with host, “zen” Jen, who had her transplant done in Chicago.
Whether you’re researching HSCT in Moscow, a veteran or currently receiving treatment, I encourage you to give it a listen. There are lots of little details about the treatment, the staff, recovery, Dr. Fedorenko, and two of my “superpowers” that were invaluable during treatment and recovery. Click on the image below for direct access.
While I’ve got you here, keep an eye out for an upcoming announcement about an incredible opportunity I’ve been given to continue advocating for MSrs on a much larger scale, and directly to my target market. It’s an unprecedented chance to share updates on the book I’m working on, speaking gigs, collaborations, and the patented mobility device I created.
DON’T MISS OUT ON ALL THE GOODNESS COMING IN 2019
IF YOU HAVEN’T ALREADY SIGNED UP FOR EMAIL UPDATES FROM ME, HERE’S YOUR CHANCE